People and families who suffer from rare diseases are looking for some help from the province.
For those battling rare diseases treatment isn’t straightforward and often costs a lot of money out of pocket, especially in Ontario.
Marion Roth who has idiopathic pulmonary arterial hypertension said: “Why don’t I have the rights to the same medications as people in Quebec or out West?”
Roth, like many of the people at the gathering, shared emotional stories about diseases most people have never heard of.
They met with Kitchener-Conestoga MPP Michael Harris, who is hoping to aid in that fight and bring forward a motion at Queen’s Park next month.
The motion is calling for an all-party committee to look at rare diseases, the delivery of funding for the diagnosis and treatment, as well as training for medical professionals and support for families.
The motion will be debated on March 3.
